Anna had an appointment with the pediatric ophthalmologist last week, and her eyes are improving! In fact, the right eye is totally clear. The left eye still has just a trace of inflammation, but less than six weeks ago. The increased methotrexate is doing its job, and Anna hasn't experienced many side effects so far (except from a little nausea and vomitting a few hours after the shot).
It will soon be a year (or maybe it's already been a year) since her eyes first began flaring after trying to taper off the methotrexate. Except for the shots each week and the nightly doses of folic acid and Pepcid Complete (and occasional heartburn), life seems pretty normal, although normal is VERY hectic and chaotic! The school year will soon be over, and with as many activities that the kids are already looking forward to, I think the summer will fly by!
I keep this blog in part to easily update family, friends, and other JA parents (and any other interested persons!) on how Anna is doing on her journey with Juvenile Arthritis. Since Anna was first diagnosed in 1999, the terminology has changed. I believe that now children are diagnosed with Juvenile Arthritis, or Juvenile Iodiopathic Arthritis, et. al. However, I created this blog a long time ago, when people referred the disease as Juvenile Rheumatoid Arthritis. Hence the "JRA."
Tuesday, May 23, 2006
Thursday, April 13, 2006
It's been a while since I've posted any updates! But I'm not sure if anyone is reading, and life has been extremely busy! We had an appointment with the ophthalmologist about six weeks ago, and Anna's eyes were improving, so the doctor did not want to change one thing. So we were optimisitc and glad that we didn't have to add eye drops again or increase the methotrexate. Went back for an eye checkup yesterday, and the inflammation in the left eye is increasing again, so we are increasing Anna's Methotrexate dose starting this week. The inflammation isn't bad, but it needs to be addressed.
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