I keep this blog in part to easily update family, friends, and other JA parents (and any other interested persons!) on how Anna is doing on her journey with Juvenile Arthritis. Since Anna was first diagnosed in 1999, the terminology has changed. I believe that now children are diagnosed with Juvenile Arthritis, or Juvenile Iodiopathic Arthritis, et. al. However, I created this blog a long time ago, when people referred the disease as Juvenile Rheumatoid Arthritis. Hence the "JRA."
Thursday, January 29, 2009
Just a little update . . . .
We've lowered the Cyclosporine dose to 75 mg., but won't know what effect (if any) that will have with Anna's eyes. We have appointments with both specialists in March (different days/weeks). In the meantime, we've been living life and having fun, although everyone in the family has had some sort of virus (each a different type) in the early part of January. Anna's virus affected her stomach (heard later on the local news that people were flocking to the ER with Anna's symptoms, although we didn't . . . just rode them out---she had rather severe stomach cramps---among other things---with her virus). Anyway, the only reason I mention that is because we let her skip the Cyclosporine and even a weekly dose of Methotrexate. I really need to write that down, because the ophthalmologist likes to know every detail (when?, why?, how much?, how long?) if we skipped a dose or two. In the past, a skipped dose or two (while recovering from a virus) has not had any affect. We'll pray it doesn't this time, as well.
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2 comments:
Hope that the skipped doses don't make a difference to her uveitis.
I lurk occasionally in your blog, and love to read when others with JIA are having a good run :) long may it last!
Oh, thank you, Jodie! It's so nice to know that people read the blog occasionally. We won't know how the uveitis will react to the decreased dose until March 20th. Long wait, but that's her next appointment. :o) I'll post here once we know.
Thanks again!
Tammy
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