We received news today that we've been waiting a very long time to hear. Anna's eyes are CLEAR of inflammation once again!!! Clear since October! I think this is a record for her! Six months with no inflammation (uveitis) in the eyes. The ophthalmologist seemed so pleased to be able to tell us we could stop the Pred Forte eye drops (that DID please me!), and to tell us that the pediatric rheumatologist could begin to lower the dose of Humira. Ah! But there's the clincher---the part that is bittersweet. The part that keeps me from doing a little dance of joy. We'll have to wait until we see the pediatric rheumatologist again (not scheduled until July, but until then, Anna has a CT scan scheduled and will have injections to the TMJ scheduled). I have no idea what we'll do from here, but I am fairly certain that if active arthritis "broke through" on this current dose of Humira, I don't think we'll be tapering the dose. Until then, we'll just "keep on keeping on," doing all of the things that eighth grade students do in their last few months (ever) of middle school---some field trips, track practice, bassoon lessons, etc. We'll keep you posted . . . .
4 comments:
Hi, I have been on Humira for years, and was diagnosed with JRA when I was 18 months old, (I'm 35 now). I started a blog to help family's who may have any questions :) Here is my link if you are interested.
http://princessintrainingmylifewithjra.blogspot.com/
I am soo happy for your beautiful eyes!Kate from Zagreb
Lorrie--thank you for commenting on my blog! I will check out your blog. Even though I'm sorry that you've been on this journey, I'm actually glad that there are people who have experience and can offer advice and encouragement--especially as Anna grows up and becomes independent. (I'm so sorry it took me this long to moderate and then publish the post. Life has just been really busy. I apologize!)
And Katie (from Zagreb)---thank you for your kind and cheerful words!
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