Monday, February 13, 2012
It is always a joy to share good news, and we have great news for the beginning of 2012! Anna saw the ophthalmologist in the first week of January, and her eyes are clear of inflammation---clear since November! Such a long stretch of time for us. I can't even remember the last time that she went months without any inflammation (usually only a trace in that left eye). We don't have to go back for TEN WEEKS! (Hershey is a nice town, and the drive isn't all that bad, but taking that trip every few weeks for doctors appointments really takes chunks out of our days, and Anna really HATES to miss school---I know that's a little odd for a teenager) Then last week, we saw the pediatric rheumatologist for a rather short visit. No changes to medications yet . . . if the eyes stay clear, we may try tweaking the Humira dose from every ten days to every two weeks. An MRI will be scheduled soon just to check on the status of the TMJs. And we may have two options to deal with any the TMJs should any active arthritis show up in the MRI (the option of choice would depend upon the extent of activity and/or damage).
And so life goes on, and the journey continues. We can look back and see that there have been some mountains we've crossed, but right now we're in the plains with the sun shining and a nice breeze blowing. The realist in me knows that there is currently a Methotrexate shortage (I don't know how and if that will affect Anna, but I'm choosing not to worry about it today). I also know that Humira is a potent, expensive drug. But so far, we have seen no side effects emerging, and we have an assistance plan from Humira which takes our co-pays down to $5 per month (for a shot which costs about $800 per syringe---otherwise our deductible would be $88/month). One of Anna's favorite Bible verses is "Don't worry about anything; instead, pray about everything. Tell God what you need, and thank Him for all He has done." (Philippians 4:6) We have so very much to be thankful for, and that will be our focus.