This BLOG will be an easy way to update family, friends, and other JRA parents (and any other interested persons!) on how Anna is doing on her journey with Juvenile Rheumatoid Arthritis.
Thursday, March 29, 2012
Good News -- Yet Bittersweet
We received news today that we've been waiting a very long time to hear. Anna's eyes are CLEAR of inflammation once again!!! Clear since October! I think this is a record for her! Six months with no inflammation (uveitis) in the eyes. The ophthalmologist seemed so pleased to be able to tell us we could stop the Pred Forte eye drops (that DID please me!), and to tell us that the pediatric rheumatologist could begin to lower the dose of Humira. Ah! But there's the clincher---the part that is bittersweet. The part that keeps me from doing a little dance of joy. We'll have to wait until we see the pediatric rheumatologist again (not scheduled until July, but until then, Anna has a CT scan scheduled and will have injections to the TMJ scheduled). I have no idea what we'll do from here, but I am fairly certain that if active arthritis "broke through" on this current dose of Humira, I don't think we'll be tapering the dose. Until then, we'll just "keep on keeping on," doing all of the things that eighth grade students do in their last few months (ever) of middle school---some field trips, track practice, bassoon lessons, etc. We'll keep you posted . . . .