I keep this blog in part to easily update family, friends, and other JA parents (and any other interested persons!) on how Anna is doing on her journey with Juvenile Arthritis.
Since Anna was first diagnosed in 1999, the terminology has changed. I believe that now children are diagnosed with Juvenile Arthritis, or Juvenile Iodiopathic Arthritis, et. al. However, I created this blog a long time ago, when people referred the disease as Juvenile Rheumatoid Arthritis. Hence the "JRA."
Thursday, March 29, 2012
Good News -- Yet Bittersweet
We received news today that we've been waiting a very long time to hear. Anna's eyes are CLEAR of inflammation once again!!! Clear since October! I think this is a record for her! Six months with no inflammation (uveitis) in the eyes. The ophthalmologist seemed so pleased to be able to tell us we could stop the Pred Forte eye drops (that DID please me!), and to tell us that the pediatric rheumatologist could begin to lower the dose of Humira. Ah! But there's the clincher---the part that is bittersweet. The part that keeps me from doing a little dance of joy. We'll have to wait until we see the pediatric rheumatologist again (not scheduled until July, but until then, Anna has a CT scan scheduled and will have injections to the TMJ scheduled). I have no idea what we'll do from here, but I am fairly certain that if active arthritis "broke through" on this current dose of Humira, I don't think we'll be tapering the dose. Until then, we'll just "keep on keeping on," doing all of the things that eighth grade students do in their last few months (ever) of middle school---some field trips, track practice, bassoon lessons, etc. We'll keep you posted . . . .